Thursday, 23 February 2017

This serious moonlight…

This review is dedicated to Paolo Pezzangora – without whom there would be much less musical magic in the world.

Whoever writes the Orchestra of the Swan’s programme notes is either a genius (doubtful); has a crystal ball – in which case: can I borrow it, please…? – or understands Artistic Director David Curtis’ winsome whimsies far too well – for they had written at the end of the (supposedly) final work of yesterday’s concert at Town Hall, Birmingham: Haydn’s 59th symphony…

Watch David closely, though, the concert – unless he rejigs the programme (again) – may not quite end when you think it does!

…and, of course, he opened with it, didn’t he?!

Mind you: I got absolutely soaked on my short hobble from Snow Hill station – ‘weather bomb’ Doris already making her bad temper known – so the ‘Feuer’ was just what was needed to drive out the damp: especially the rude interruption, in the slow movement coda, from the horns – who then excelled in the final, galloping movement! Even a member of the orchestra said he’d never enjoyed playing a Haydn symphony quite so much! And it was not just invigorating; but truly, musically, thrilling. OOTS excel at many things: but they do seem to have a special affinity with the wit and wisdom of the Father of the Symphony.

I know I have a slight rebellious streak. Playing the piano throughout my childhood, I wasn’t so much interested in perfecting a piece, but re-arranging it: even if it simply meant playing it (usually considerably) faster, or an octave higher. This is why I became a composer: I preferred pushing boundaries and trying new things…. I am conscious that this approach, and the musical style that it produces, may seem challenging – arrogant, even. But, actually, it simply stems from a desire to try new things, rather than something that has already been fully explored and perfected. Why rewrite what has already been done so well?
– Joanna Lee: Commissions accomplished…!

David said that he’d switched the programme around because the composer of the next work, Joanna Lee, shared that affinity – and so it proved to be. Blue Blaze – Dance Suite is the third of four commissions written for the orchestra’s 21st Anniversary Season: all written to match an existing concertante work – in this case, Mozart’s Sinfonia Concertante for Four Winds (which would, eventually, close the concert…). Like Paul Moravec, before her, she had removed the oboes and horns from the ripieno (an incredibly sage decision: at least for this venue – see below); although this did not mean that the instrumentation was either lacking in variety or power. In fact, it was difficult to believe, at many junctures, that there were so few players – so few types of player – on stage: such were the variety of sounds conjured into being.

Despite being christened a “Dance Suite”, for me, the constituent movements rapidly materialized as prospective interludes (somewhat like the entr’actes Haydn’s ‘Feuer’ Symphony would become, albeit of a play) for an opera I would love to see and hear. There were distinct characters and leitmotivs in there: just begging to burst out into a broader arena; to tell an even greater story. (The closest analog, I suppose is Peter Grimes – Joanna having mentioned Benjamin Britten as an influence in the pre-concert talk.)

Blue Blaze Ballet, the first “dance’, is a beautiful, heart-rending depiction of dawn; an axiomatic demonstration of why we need such commissions; and why OOTS exists. This, I believe – however wonderful their performances of the ‘classics’ always are (witness the Haydn) – really is their ne plus ultra – although, as David explained, he tries to take exactly the same approach, whatever the age of the work or composer, with every piece of music: going back to first principles with each score; trying to get inside each composer’s head (alive or dead; present or absent); always aiming to tell the music’s ‘story’.

Although I had access to the score, having not made it to the world première in Stratford-upon-Avon, last week, I had forgotten that this movement was “inspired by daybreak at Aldeburgh beach in Suffolk, with its glistening blue sea and sky”. But you didn’t need to know: it was so astoundingly obvious – you were transported there: the shingle digging deep through the soles of your shoes – yet feeling no pain, distracted by the overwhelming beauty which Joanna had captured, to a note.

The entry of each of the soloists was sublime: Phillip Brookes’ bassoon playing the first notes heard, by a whisper. Such a reserved player; and yet the expressiveness (and of my favourite woodwind instrument) stretched effortlessly to the very limit – even in that seven-bar, fading pedal. Sally Harrop’s clarinet and Francesca Moore-Bridger’s horn subtle in their lyrical, slow syncopation. And then, finally, Victoria Brawn’s curlew‑like cry, beneath a suspended high mist of almost inaudible violins. There is no returning from such a piercing of the soul: not just the rising of the sun; the breaking of the day; but the dawning of belief – music that calls to you; calls to you… that makes you belong. And so easily, too.

Why rewrite what has already been done so well?

It therefore doesn’t matter that I cannot manufacture a box to neatly lock this music away in; and then label it. It just is what it is: Joanna Lee’s. All I know is that I was instantly smitten. I was also astonished – upon returning to the score – to discover just how complex and detailed it is, when it produces such apparently ‘simple’ results. Despite all that hard work, this is a creator who obviously understands the decidedly ‘un-simple’ relationship between stave and sound-stage.

The result is almost impressionistic, but with the clarity – and impact – of Sickert or Rodin. (In the score, between each movement, one whole page is given over to a bar marked in each part with a pause. This is a composer who knows David and OOTS as well as her own mind!)

How many ways are there to play a second violin?! I do not know. But if they are not demonstrated in the second movement, Hockley Hip-hop, then I would be surprised. And there may even be a few that are not even mentioned in The Great Book! This was astonishing! (And this section may well end up containing too many exclamation marks!) It also could not have provided more of a contrast with the first – and yet, somehow, miraculously, it did not make a dent in the atmosphere which that had gathered together. (And, no: I do not know how. Some sort of magic, I expect.)

Phillip’s bassoon set off with its funkiness dialled up to eleven. Woodwind instruments are good at this: quirky sharpness, mixed in with a bit of offbeat legato… – and Joanna obviously knows how to elicit the maximum from them: especially with the time-signature changing with each bar-line. A single pizzicato from the first violins emphasizes a single solo note; but the second violins decide that strings just aren’t good enough for them, and start rapping the backs of their instruments with their knuckles! Sensational stuff! And wonderfully inventive! More pizzicatos, and Sally’s clarinet joins in – equally funky; then Victoria’s oboe: a tad more lyrical. Meanwhile, the strings are doing their best Buddy Rich impersonation – and pretty good they are, too (although, occasionally, they appear to forget, and elements of Django Reinhardt slip in)!

By now, Francesca has joined in: stressing certain notes and phrases the other three are tossing about – and there are smiles (mixed in with frowns of intense rhythmic concentration) everywhere. Dynamics were as precise as Audi’s best engineering; and David’s control of tempi – and those complex switches of measure – as lissom as the notes themselves. But it wasn’t all fun. Occasional passages of quiet lyricism crept in – always rapidly dissolving into impish quirkiness, though… – a masterclass in technique for everyone on stage!

We could have done with the cold showers pounding at the windows. But instead, something much, much better – Dunwich Dirge. This was marked “sullen” in the score. But, as dark as it was, it was in no way miserable – but it did begin with that intense dark, espresso blend of string-writing that only the English do so well. It always looks remarkably simple on page – but encapsulates such complex sensations; and has the ability to drag the tears on to your lap before the end of bar four. And then the horn arrives; followed closely by the woodwind – and there’s a veritable puddle.

This was, perhaps, less concertante than the other movements – and yet the horn did lead on occasions: providing more beauty – but of a deeper kind than the opener. Again, the dedication to Britten shone through – no pastiche, or necessary (or voiced) direct quotation (or perhaps too well-hidden for my fading ears) – just the beneficent ghosts of Dennis Brain’s always perfect pitch and tone, and the mellifluence of Peter Pears’ precise pronunciation and explicit emotion, beaming down from above. This was soul-rending stuff. But far, far, far too short.

The finale, Rugrat Rumpus, “inspired by the movement and unpredictable behaviour” of the composer’s two-year-old daughter, was as witty as the second, but perhaps a little more cartoonish. A fortissimo flourish from the wind; a loud pizzicato from the violins and violas; a growl from the cellos and basses; a Gershwin-like glissando from Sally; lots more pizzicatos; a trill from Sally (for suspense) – and, finally, we’re on our way: with a wonderful clarinet solo, which is then taken up by the oboe and bassoon.

This is a virtuosic way to end – and I must have spent most of it with my jaw in that puddle… – but it was great fun! Afterwards, though, it definitely needed an interval, for everyone to recover.

People keep telling me that (what we insist on calling) classical music is on its last legs – but not on this evidence; not on the creative side. This was another – and, for me, the best of the three, so far… – stupendous new work. (And, no, you probably couldn’t dance to it – unless you were Tamara Rojo, perhaps – so why not a ballet, then, instead?) It was another stunning, original, wide-ranging, demonstration of awe-inspiring talent. Gosh, David and OOTS have a good nose for this stuff!

Now, if we could only find a big spigot, somewhere, with a flood of young audience members flowing out the other end, to match…!?

After the interval, we had a gem of an overture by a twelve-year-old. On the evidence of this, he’ll go far. Mozart was his name, and the opera it was written for was Bastien und Bastienne. No, me neither. OOTS gave it the welly and respect they give to everything, though; as they did the Sinfonia Concertante which polished off the afternoon.

There’s a lot of debate about the authorship of this – but the woodwind writing is so perfect and balanced it has to be Mozart’s. And, as you would imagine, the four soloists were once again perfect. I will say one thing about it, though: the move from the central Adagio – one of the composer’s typically beautiful slow movements – to the final Andante con Variazioni reminded me a little of the last two movements of Joanna’s work: the sublime to the hilarious.

I may be misremembering (so I apologize if I am: but it may be that the clarinet player in question was actually telling me of another of his ilk…) – but I think it was Jack Brymer who suggested that the variations of this could be used as a drinking game: lining shots of your favourite spirit up for each orchestral ritornello, so that it gets more rowdy as it progresses. (What the orchestra and conductor are supposed to do, I do not know.) But it does have a tendency to get out of hand if you let it. Although I have to say that everyone involved, yesterday, was remarkably sober! And received the extended ovation they well-deserved! (Back out to meet Doris. Her mood had not improved one jot.)

A long time ago, I mentioned Joanna’s removal of the horns and oboes from Mozart’s Sinfonia Concertante. Before I go on, I have to say that the horn playing, yesterday was truly remarkable: especially for its accuracy (and I say this as someone who tried to tame the beast; and, after many years, lay badly bruised and defeated…). This is not an easy instrument to master. However, it is also – like all brass instruments – one whose volume ranges from moderately loud to “ouch, I think I’ve lost an eardrum”: even though it is, by far, the quietest (or least loud) of the breed.

As those who frequent it will know, at the back of the Town Hall stage is a solid wall. In other words, the perfect (literal) sounding board for the business end (bell) of the horns. Now, in the suitably bouncy Haydn, this wasn’t really an issue. The symphony is pretty ‘fiery’ – although that’s not really how it earned its nickname. And, in the last movement, they run riot: although it was supposed to be a dialogue with the oboes – but from where I sat, stage right, it sounded quite one-sided: because I was directly in line with the blast from that “sounding board”. Had I been sat stage left, the bodies of the orchestra would have muffled them: and, from experience, all would have been fine. But it wasn’t.

Now I’m presuming that all was well in Stratford ArtsHouse, for the première: as it has curtains; and an empty stage (and I have spies). But I would like to ask that whoever is responsible to, next time, perhaps strategically place a mattress behind them (or a small cushion in them)?! (Actually, all you really have to do, is place them in the middle of the back row, rather than the end.) When you’ve only got a handful of string players, balance is everything. Thank you!


Sunday, 5 February 2017

Anything different is good…

Introduction
I didn’t know it was National Time to Talk Day until the closing moments of my assessment in Warwick Hospital’s Clinical Health Psychology department – but it seemed such a neat coincidence that my appointment (last Thursday) should have taken place on such a significant date that any doubts I had rapidly faded. By the way, it was Groundhog Day, also. However, I’m still struggling to find an apposite correlation with that….

I like to see a man of advancing years throwing caution to the wind. It’s inspiring in a way.

My hesitancy had concerned the publication of what follows. But, if we’re going “to get talking and break the silence around mental health problems”, as I had previously done, eleven months ago – and without any real qualms – then this is what it’s going to take. Not just wearing “my heart upon my sleeve For daws to peck at”. But allowing those who care to have a wee peek inside: and see that “I am not what I am”.

Originally – although I’m not really sure what this post really is; or represents… – when I started putting it together, it was simply a random collection of bullet-points, odd sentences and paragraphs (a brain dump); together with a couple of (what I thought were) relevant quotations – and it was for my own use; my reflection. But, over the last few weeks, as I have tried to shape it so that it better expresses what it is, currently, to be me; how my life is affected by physical and mental illness (and with the growing possibility of it being made available to an external audience); it has “grow’d like Topsy”.

I suppose what I was really trying to achieve was some sort of self-analysis – trying to put my head, my thoughts, into some sort of approximate order – so that the fifty minutes of my consultation would be used efficiently. [As it turned out, my disability – and, perhaps more importantly, how I got to this point – is so blummin’ complex, that, after an hour or so, we (me and my patient psychologist) weren’t more than halfway through. (Softly, softly, etc..)] Most of the subsequent writing effort, therefore, feels like it has been spent imposing some sort of structure on my original jottings… – although I am not convinced that I have triumphed in this regard.

Incidentally, I don’t think such an enterprise can ever be truly complete; but I hope that what you now see at least achieves its (now finalized) aim in taking “the stigma out of something that affects us all”. My mind and body are both worn out from over twenty years of (several different forms of continual, fluctuating but) insistent pain (and its comorbidities – which you will probably have already found scattered throughout these pages… – the neurological and physical damage which generates that pain; and the additional symptoms that this provokes). That my mental problems stem from the cumulative clout of these is fairly obvious; but, whatever their causes – for obvious reasons – here, I can only touch lightly upon the surface of their effects and implications: writing lines that you may be able to trace a finger between… – but that is all.


A year’s age on me
Twelve months ago, after my GP had given me that formal diagnosis of clinical depression (and a hug), I wrote that post, referenced above – trying to capture, to clarify, what such a verdict meant to me:

This time, though, it feels different. It is different. I am plummetting, Alice-like, down an infinite rabbit hole; and with very little to grab onto. And I know I have been falling for months – stupidly (and not because I was ashamed, or I would not be writing this…) because I thought that, yet again, no matter how deep and dark things got, I could still yet pull myself out of it, as I have so many times before – or at least work my way, on my own, to the other end of whatever it was I was going through.

But, although, a year on, I am still “falling”, I now feel as if the body which contains (whatever I now define as) “me” no longer belongs to (that) me; that it is actively working against me; that I’m constantly at war with it… – and am losing most of the battles. [In essence, that this shell of mine has enough chronic health conditions – innate, or purely medical (e.g. asthma; hearing loss); as well as those caused by being on the wrong end of a sequence of road traffic collisions (RTCs) – to defeat several ‘me’s. (A few days after writing this I realize that a more apposite metaphor may be that my body is holding me captive… – and torturing me – see below.)]

I’ll go walking in circles
While doubting the very ground beneath me
Trying to show unquestioning faith in everything

– David Sylvian: Forbidden Colours

I’m certainly not in control of my body (and its health); or, more importantly, of my life – which feels like it has very little meaning (by my normal, high standards): and my self‑actualization is therefore teetering on the edge of a cliff. (In fact, sat in the waiting room, I realized I was verging on becoming some sort of automaton: following the instructions laid down in my diary; my to-do list; my medication reminders, etc. – if necessary, putting on some sort of act, or front, when these were carried out in public – then resorting back to the blank-faced zombie mushroom I feel is the norm. Too many years of learning to hide all the physical distress has led to me becoming a natural at hiding the mental stuff, too….)

Headaches, neuropathic pain, vertigo, insomnia, etc. – and the resulting lethargy and mental fuzziness – seem to have the upper hand; and, after over twenty years of declining health (when I was in control, amazingly, for much of the time; and pushing back, for most of it – in fact, I used to be bloody good at this thing I can now only occasionally catch fleetingly in my peripheral vision…), I’m now struggling even to think about fighting. To be honest – to be blunt… – I’m not really sure who or what I am any more; what my relationship is to/with the world; and many of my certainties are therefore circling the drain. Basically, I’m sick and tired of being sick and tired…

  • of the constant pain weighing me down;
  • of the persistent cervicogenic headaches pinning me to my bed;
  • of the lack of physical and creative ‘oomph’; and
  • of the inability to live a life well-lived.


All in my head
The condition which has most impact – in that nothing currently controls/prevents it; nor can I be in any way productive during an attack – is migraine (convenient shorthand for what should formally be labelled ‘cervicogenic headache’: as this originates in the mess of neurological and structural damage in my neck – although the symptoms frequently include, or superimpose, elements of ‘traditional’ vestibular and hemiplegic migraines) – which is why it is the one condition my GP and I are focusing on (and have been for some time: especially as the buggas insist on continually increasing in frequency and intensity – linked as they are to the ongoing physical decline of my neck; especially its ‘wiring’):

  • I had only three or four days completely free from a ‘migraine’ attack in each of the last three months – in other words, this isn’t just “chronic migraine”, but near-enough permanent.
  • I had a ‘migraine’, effectively, for forty minutes of every hour: i.e. two-thirds of each month (whether asleep, or, more likely, awake) spent trying to exist in a world of intensely-painful fug, and seriously-reduced physical capacity.
  • The average duration of the thirty migraines I experienced in that time was around two days – although one lasted just short of six. [This is not (i) unusual; (ii) a life.]

And, yes, I suppose, this is one way of warning of/apologizing for my increasing lack of instant responses to demands placed on me; or replies to emails sent to me, etc.. But please don’t stop making or sending them! Although things are rather hit and miss, at the moment, I need to keep busy… – in the same way that I need to keep breathing. Just forgive me when I let you down… – but then feel free to nag me. Please…!


Lear’s shadow
It is only through doing such things that I’m (just about) managing to hold on… to something (whatever it is) – but, at the moment, only by the tips of my greased fingertips… – and aided through the love of my family, and the care of my friends (although I don’t like the obvious concern that I precipitate); as well as the fulfilment I gain from my writing (when I have the energy and momentum). This goes some small way to compensating for the (Marxian) loss of identity that resulted from me leaving work, thirteen years ago (which felt like retiring from a job I loved twenty-odd years too early); and obviously provides a small amount of ‘structure’. These are external things, however (things that are imposed). What I need is internal stuff (conviction, confidence, assuredness…).

To be psychologically well while physically sick involves the belief that your personal worth transcends physical limitations; you need positive self-esteem for true adaptation. This belief in your self-worth rarely emerges until what you have lost and grieved for stands second in importance to precious moments of inner peace and joy.
– JoAnn LeMaistre: Coping with Chronic Illness


Walker’s block
Whilst I believe I’ve been depressed (to varying degrees) for many years, it is only in the last two or three that such a state has become obvious to those closest to me. Before then – albeit with occasional setbacks (physical and psychological) – I had pretty much retained the upper hand: understanding my limitations; and working reasonably happily within them. (Although, of course, the grief for one‘s former able self never totally dissipates.)

But now, it’s reached the stage where (as my regular reader will have noted) I’m not able to relieve the resultant mental pain at all with my habitual long walks (which are great for my soul, even if somewhat ruinous for my body – although both only in the short term). Even my writing has become more graft, oft-times, than a labour of love: as I repeatedly wrestle for the right word, or lose sight of the end of a sentence before I even begin it. In fact, recently, it has almost become a burden, rather than the delightful, thrilling, rewarding pastime (and catharsis) it always used to be. But, so far, I have managed – just about – to keep going (although my productivity has also plummeted).


The two enemies
I know there isn’t a law which proclaims that all lives must be useful (or happy). But, because of all the above, I do currently see mine (as I do my self) as pretty much worthless – overwhelmed by pain, fatigue, and powerful medication – even in the face of generous approbation from those who comment on my blog (or other stuff): not to mention the unquestioning (but anxious) love of those closest to me. [Schopenhauer would probably say that it serves me right for trying too hard to find meaning and fulfilment… – but I know no other (Nietzschean) way.]

You’re always haunted by the idea you’re wasting your life.
– Chuck Palahniuk

Coupled with this, I know my priorities are all over the place, in striving to render it otherwise. However – and this is probably another key component of the “something” I cling on to… – I know that, somewhere, deep inside me, is a tiny, hidden (to me) bundle of resilience. For instance, with the astonishingly wonderful and patient assistance of IAPT, last year I managed to come out of the other side of PTSD. This horrific affliction stemmed mainly from the three road traffic collisions (RTCs) that are at the root of my accelerated physical degeneration; but also had its origins in the hate crime I experienced.

Coping is not ignoring. In fact, it is the opposite… [learning] to live with… pain in a realistic context… the beginning of a series of steps that give a sense of understanding and a type of control.
– Patrick Wall: Pain – the science of suffering

I have certainly become much less social, recently, and more anxious about socializing; as well as more withdrawn, generally (although some of this stems from me not wanting to impose my ‘miserableness’ on others; or to be seen in this state). Because of the hate crime attack – as well as worries about my health failing instantly and disastrously – leaving the house feels much physically riskier than it did. And yet I dread becoming a couch potato (which is where I feel I am currently heading… – and rapidly): because I am not the kind of person who is content to sit in front of the television all day. I have always been active, physically and intellectually (despite my increasing impairments); and this is where my satisfaction with life originates, as well as my enjoyment and identity.

In a nutshell, I am aesthetically motivated – whether that be by a long walk in the countryside (with or without my camera); an afternoon in an art gallery; an evening at the theatre, or in a concert hall; or writing about all these things (which can be therapeutic in their own right) – but I no longer have the energy or motivation to enjoy them as much as I did. And, even when I try and plan to – for instance, booking a ticket for the RSC (often many months in advance) – too frequently, my health will prevent me from attending. (A double whammy, if you will.)

Saṃsāra – “a cycle of aimless drifting, wandering or mundane existence”.

Now I come to think of it: this lack of foresight – of knowing what I will be capable of on any given day, even at any hour – is what makes my life so difficult; so difficult to manage. It is bad enough being disabled; but having a condition that varies (and rapidly) from the just-about-coping to basically-not-being-able-to-do-anything – a force ten vestibular and/or hemiplegic migraine rendering me incapable even of reading in bed (intelligibly, anyway) – is the most limiting factor of all. It is not only the number of ‘treats’ (wants) that get cancelled at the last moment, but necessities (needs), too: such as medical appointments. Just imagine going to bed, each night (if you actually get that far), not only not knowing how much (if any) sleep you are likely to get – anywhere between zero and fourteen hours; and on successive nights… – but what your physical and mental capabilities will be, when you awaken (having already ‘accepted’ that your life can never be as productive, pain-free, or as pleasurable, as it once was). Going back to what I said earlier: it’s like being locked in a cell whose dimensions constantly vary; and whose facilities (comforts) can be withdrawn at any moment – even for good behaviour.


Tunnel vision
Overall – although I know there are others much worse off than me… – I just feel overwhelmed…

  • because there are too many things wrong with me for me to be able to cope (although the decline has been reasonably gradual);
  • because these “things” now impact my life too much for me to make it meaningful, and give it the value I crave.

Finally, I feel as if I have failed: not being able to deal with this situation any more using my own inner resources; not even being able to see how to break it all down into manageable ‘chunks’, or what are reasonable risks to be taken (although I’m not quite sure where the tipping-point for the onset of this inability actually was…). [Of course, it doesn’t help that the world outside my window – everything I believe in, politically and morally – is going to populist hell in a ‘post-truth’, ‘alternative-fact’, handcart.]

I think the biggest problem is that I can only see things continuing to get worse (as they have done, generally, physically, ever since the first RTC, in 1996); and I don’t want to live the rest of my life like this (in a combination of immobile purgatory and fatalistic limbo…). The decline in my physical health has certainly accelerated in the last two to three years… – MRI scans confirming this; but not proffering easy solutions – although getting any answers, getting help, from the (physiological side of the) medical profession (apart from my GP) seems near impossible.


To learning much inclined
I go on about “the blind men and the elephant” a lot: meaning that the complexity of my problems requires a multidisciplinary approach – and yet so many (not all…) of the specialists I encounter treat me as a commodity, and narrowly within the confines of their own specialism: which is pointless. (What is wrong with the model of deductive ‘generalization’ as applied by a diagnostician such as Dr Gregory House?!) It doesn’t help that many consultants are quite (proudly) arrogant; cannot communicate (which was my highly-paid speciality, before ‘retiring’); and will never accept that a patient can be extremely knowledgeable about their own condition (even though, recently, this has meant that major decisions about my treatment have had to be made by me and/or my GP – which, although reinforcing our mutual trust, has brought both of us added pressure). Nor that they only want to treat you if they can cure you, and therefore log you as a success… – which, in my case, is not possible (and, therefore, immediately puts my wants and needs, and the consultant’s wants and needs, in conflict).

And then they have the temerity to blame the lack of a magical improvement in your health not on their blinkered inactions – but, once they’ve gotten wind of it, on your depression – twisting the knife yet deeper into your guts with their deliberate self-abnegating ignorance. (How many times will these people put the cart before the nag…?)

Traditionally, the experience of serious illness has been approached in two ways: (1) a gloomy perspective of resignation, self-denial, and helplessness, or (2) a Pollyanna approach that denies altogether that there has been a real trauma. Both of these perspectives distort and disguise the reality of chronic illness.
     The first perspective views the chronically ill person as a failure. This is the patient who does not respond to the “miracle” of modern medicine, and somehow the lack of recovery is often perceived as the patient’s fault. This attitude of blame accounts for some of the worst psychological abuses of patients by health practitioners…, an attitude typified by the too-frequently heard statement, “Stop complaining. You simply must adjust.” Unfortunately, the sick person may also adopt this punishing attitude toward himself or herself. Sadly, the word “adjust” too often means “resign,” “settle for less than a desirable existence,” and “surrender.” At its worst, “adjust” is just another way of saying “You are now a nonperson without the right to experience strong passions, desires, or fierce and unyielding hope.” All the anger and blame inherent in this attitude is misdirected: the patient rather than the disease becomes the target.

– JoAnn LeMaistre: Coping with Chronic Illness


Postscript
What this is (probably) really all about is that A Decision Must Be Made. And Soon. But it comes with many risks: whichever way the coin falls. My depression, therefore, is probably – when all is said and done – a symptom, or representation, of my prevarication.

I know I need perspective – which I currently lack: my nose pressed hard against the framed glass of the bigger picture… – to make that decision. I also know that my ability to cope with my ‘condition’ is coupled with the gaining of that perspective. (I also know that I need to be in much better shape, physically and mentally, before making such monumental decisions – ones which come bundled with humungous amounts of jeopardy. And, although it may seem a little counter-intuitive, at first, if I’m contemplating a surgical intervention, say, that could put me in a wheelchair, it’s probably best that I’m already sat in it: i.e. that it truly is a last resort.)

So, I shall keep on sitting in the psychologist’s chair until I find the route-maps or tools that will get me there (probably helped by an encouraging boot to my backside) – presumably (as I’ve never done this before) improving my psychological wellbeing, so that I can go back to managing (what’s left of) my physical wellbeing; rather than reneging on my responsibilities, and relying on others doing it for me. If I can regain some of my former physical and mental activity, and approach both with joy (rather than fear), then I will be a very grateful, and happy, bunny. I reckon it could take a while, though….